“Meeting them in person, it’s clear they’ve worked hundreds of minor miracles. And so has Sean himself. Twelve years later, he is still living out his very full life, his winning personality proudly breaking through his severe physical and neurological disabilities. Everyday he continues to define himself: a fanatical Munster supporter; a serial visitor to Disneyland; his Gaelic Footballing sister’s biggest fan; and so much more.”
Caring for a child or young person with a long term condition can leave parents with a numerous questions that often do not have straight or simple answers. Depending on your child’s illness, their age and their life expectancy, the options and decisions to be made by parents and the child can vary hugely.
This sections of the website seeks to offer parents advice and information on caring for their child, it provides basic definitions on the different forms of care your child may receive and provides links to organisations that will be able help you with the care of your child.
