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Home » Palliative Care Journey » Transition Care – Adolescents & Young Adults

Transition Care

This page is for young people and their families, carers and loved ones who are navigating palliative care and the transition to Adult palliative care services. On this page you will find information guides, resources and services to help you.

“On their second visit Michael loved it, he had ‘great craic’ with the other boys and the staff and Mary enjoyed the break too and they couldn’t wait until their next stay came around. Mary says that this too was a great opportunity for Michael to meet with other young people with similar needs to his own and help him to feel ‘less different.”

Read Michael’s Story

Advances in medicine and modern treatments mean that many children who are born with, or develop a life-limiting condition can expect to live into adulthood. Transition Care deals with the movement of young people from paediatric to adult services. This part of the website aims to inform parents and young people about this move.

Young people and their families have described the transition from paediatric to adult services as ‘daunting’. They are often leaving trusted long standing relationships with health care professionals in children’s services and facing the challenge of making new relationships with adult health services.

Transition to adult services can be challenging in a number of ways;

  • Young people with life-limiting conditions may have complex healthcare needs and require input from many healthcare teams and healthcare services.
  • Transition is a big change with a need to develop new relationships with adult health services.
  • Young people and their families need to know what services are available in the ‘adult world’ as these are often very different to what they have been used to with children’s services. Some paediatric services may not have an adult service version.
  • It takes time to plan and prepare for such a big change.

Work is ongoing to facilitate continuous and coordinated services during this transition process.

Good transition planning focuses on each individual young person’s needs, goals and ambitions and involves the young person, their parents, their school, their family doctor, health professionals and any other person or organisation with a relevant contribution.

Practical preparation for transition may include

  • Visits to adult hospitals or clinics to meet the care team who will be taking over from the children’s services as well as visits to college, university, day centres or other support facilities.
  • If you would like more information regarding your child’s transition, talk to the professionals with whom you have the most contact, for example your hospice nurse, social worker, children’s nurse or teacher. They should be able to provide you with the correct information and/or the appropriate contact.

Written by Dr. Hannah Linane

Noyes J, Rees S, Hastings R, Mason H, Hain R, Lidstone V. Bridging the Gap: Transition from Children’s to Adult Palliative Care. 2014.

Resources can be found at the top of this page