This guide provides practical information to support families at this most difficult of times. It aims to answer some of the questions that families might have, with some reflections from families on their own experience of losing a child. It also sets out what families should expect from children’s palliative care services with useful links to further sources of information and support.
Click here to view the resource: https://www.togetherforshortlives.org.uk/app/uploads/2019/11/TfSL-Caring-for-a-child-at-end-of-life-Parents.pdf
“Something Has Changed” is a book for 6-12 year olds when someone they love is seriously ill and dying. It can be a confusing time for a child when someone they care about is very sick. Written by St Francis Hospice Social Work Team from their vast experience of working with children and families, this book will help to give children information about what to expect. It will talk about some of the worries they might have.
Click here to view the resource: https://www.sfh.ie/shop/something-has-changed/
This booklet has been designed for parents or caregivers of a child or young person with a life-limiting condition to provide practical information around eating and drinking at end of life.
Click here to view the resource: https://patchsa.org/wp-content/uploads/2022/05/End-of-life_Feeding.pdf
This resource explains what happens as a child comes near the end of life. It provides information and practical guidance on how to support yourself and your child.
Click here to view the resource: https://griefsensitivehealthcare.org/when-child-end-life
In this resource you will find information on what to expect as your child grieves, preparing them for death, and supporting your child throughout the dying process.
Click here to view the resource: https://copingspace.org/grief-and-bereavement/Supporting-Children-at-End-of-Life/
This resource is for young people with a life-limiting cancer diagnosis. It provides information on decisions, advance care planning and more.
Click here to view the resource: https://www.teenagecancertrust.org/information-about-cancer/planning-for-end-of-life
This resource provides information and ideas to create lasting memories.
Click here to view the resource: https://palliativecarehubchildren.com/wp-content/uploads/2024/11/Making_memories_D.pdf
This resource provides practical advice for when a loved one is dying, or has died
Click here to view the resource: https://www.hospiceuk.org/information-and-support/death-and-dying-what-expect
