The Children & Young People’s Cancer Association unite the children and young people’s cancer community, driving collective action and progress. Powered by expertise, they work together to create a brighter future for children and young people with cancer.
The below guides have been developed for professionals but may be useful
Supporting young people experiencing the death of peers; professionals guidance
Communication with AYA with cancer; professionals guidance
Physical activity for AYA with cancer; professionals guidance
The purpose of the clinical guidance is to promote collaborative working across primary, secondary and tertiary care and through effective communication, involvement of the correct professionals to coordinate the continuing care and support necessary for the child/young person and their parents/guardians.
Link to resource: HSE National Clinical Guideline
Talking about sex, sexuality and relationships aims to provide some key standards for health, social care and education staff working with young people who have life-limiting or life-threatening conditions (LLTCs).
It provides information about how best to support young people, and their families, in addressing sexuality, sexuality expression, relationships and intimacy, providing signposts to useful resources and examples of the law applied to practice. It is not a comprehensive ‘how to’ guide covering every aspect of sex, intimacy and relationships but aims to highlight some of the key issues that may arise and build confidence in how to approach the issue of sexuality with young people.
Link to resource: Talking about sex, sexuality and relationships: Guidance and Standards
This resource provides information on caring for a child with a life-limiting condition. There are links at the bottom of the page to further information
Link to resource: When your child is not expected to live
