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Information Resources

Your Guide for Dealing with Cancer 16-24 years

Link to Download: Your Guide for Dealing with Cancer 16 – 24 years

This guide provides information for living with a life limiting illness as a teenager or young adult. This information and advice produced in collaboration with young people living with a life-limiting condition

Link to Resource: Living with a life-limiting illness as a teenager or young adult

This guide by Young Lives Versus Cancer includes information on:

  • How do I talk to my parents about my terminal cancer
  • How a terminal diagnosis can affect your relationship
  • How will my sibling deal with my terminal diagnosis
  • Writing a will as a young person with cancer
  • What will happen when I die
  • Emotions when you are living with a terminal illness
  • My brother or sister has a terminal cancer
  • Looking after your body and exercising with you have a terminal illness


Link to resource:
Living your life with terminal cancer

Your digital legacy means everything you leave behind online after you die. So think your email address, Insta, Snapchat, Facebook, your YouTube channel, whatever’s in your iCloud or photo stream, apps on your phone or tablet and online banking. Use this guide to find out more information about your digital legacy

Link to resources: Digital Legacy

MyWishes (previously Dead Social) is a free to use, ‘tech for good’ platform. We will empower you to write your Last Will & Testament, safeguard your Digital Legacy, plan your Funeral, curate a Bucket List, leave Goodbye Messages and make plans for your future health and social care within an Advance Care Plan.

Link to resource: MyWishes

This resource provides a checklist in phases for transitioning from childrens services to adults services

Link to resource: A checklist to a good transition

This guide has been developed to help young people from the age of 14 years with life-threatening conditions to know more about what to expect when they move to adult services.

Link to resource: Moving to Adult Services: What to Expect

This guide was developed in response to a gap in health professionals’ skills in having difficult conversations with the growing number of young adults* with life-limiting conditions who come in to their care. This gap was one of the findings of the STEPP research project (a project which looked at examples of positive practice in transition to adult health settings for young adults with life-limiting conditions).

Link to resource: Together for Short Lives – Difficult Conversations

This guide is targeted towards parents. The Compassionate Friends have created a booklet titled “Our Child, Social Media and their Digital Literacy”. A nationwide organisation of bereaved parents and their families offering support after a child dies.

Link to resource: Our Child, Social Media and their Digital Literacy

This organisation is committed to providing information on transition care, how to make it as smooth as possible, and providing practical guidance on what to consider when thinking about transitioning to adult services.

Link to resource: Steppingup.ie

This resource from Hospice UK provides information on what transition care is and why it is beneficial.

Link to resource: Hospice UK: Transition from children’s to adult hospice care

This resource contains information on Advance Care Planning, your Rights, care needs and making a will. 

Link to resource: Will Writing

This page has helpful resources related to the legal parts of writing a will, what to include in a will, how to write it and more.

Link to resource: Writing a Will as a Young Person

Citizens Information (Republic of Ireland) have created this page to help you understand the basics of writing a will. Here you can read information about how to make a valid will, the things you should consider when writing your will, and what will happen if you die without leaving a will.

Link to website: Writing a Will